Saturday, September 12, 2020

Lower Dosage

Hello,

 

It takes a blood test to determine if Leroy can move to a lower dose of the steroid. He was to have the test on Monday, but today was ten days from the last time that it had been lowered. I was impressed with Leroy’s moves to get that changed. He is feeling so much more like his old self. He called and found that he could go to the lab after I picked him up from work. Things moved smoothly. It was close to the end of their day and no one was waiting so he went right in. The lab promptly shipped off the response to the doctor who left a message on Leroy’s email that he could drop 10mg. starting today and that in a week he could lower it ten more. He is so happy not to have to wait until Monday to make the change. It is certainly a love hate relationship with this medicine. Love because it brings his headaches under control (still needs pain meds). Hate because it produces serious side effects. He is now taking half of the amount that he was originally. All this makes my life a little easier too.

 

One side effect is that Leroy gets so anxious. He tolerates no stress. In the evening he becomes quite upset. For two evenings we have just laid in the bed under more weighty blankets with me holding him as closely as I can. For some reason, that seems to relax him quite a lot. He has said it and I can feel the tension go out of him.

 

We are certainly being introduced to many new things. Before, did we live with our heads in the clouds? It is one thing, at least for me, to hear about this from others and quite another to live through it.

 

Paula

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